National Organization for Rare Disorders | NORD Overview & Contact Data

The National Organization for Rare Disorders, commonly known as NORD, is a prominent non-profit organization dedicated to addressing the unique needs and challenges faced by individuals and families affected by rare diseases. Founded in 1983, NORD serves as a comprehensive resource for those navigating the complexities of rare disorders, providing essential support and guidance throughout their journey. The organization's mission is multifaceted, encompassing education, care, research, and policy initiatives aimed at improving the lives of those impacted by rare diseases. NORD's scope is vast, encompassing a broad range of rare disorders, including pediatric conditions such as Wilson disease and rare cardiovascular conditions such as pericarditis. By fostering a sense of community and collaboration among patients, families, and healthcare professionals, NORD works to elevate the standard of care for rare disease patients. The organization's efforts also focus on advancing research and driving policy changes to address the unmet needs of this population. Through its comprehensive approach, NORD strives to create a more supportive and inclusive environment for individuals affected by rare diseases. One of NORD's notable achievements is its Rare Disease Information Database, a valuable resource that provides detailed information on over 1,200 rare disorders. This database serves as a critical tool for patients, families, and healthcare professionals seeking to understand the complexities of rare diseases. By offering a wealth of information and resources, NORD aims to empower individuals to take control of their health and navigate the often-complex landscape of rare disease management.